Chez Regional…

Funny how life throws your curve balls…the plan and expectation was we would wait for mother nature to decide when the baby would arrive, baby was due Sept 1 but given my record for overcooking my kids I assumed mid Sept. Due to some dangerously low fluids they began inducing…47 hours later she arrived.

Once home I looked forward to some normalcy…the sleep deprived kind. But somehow this time it was different. She is my 4th child and I felt very confident that I should know what I was doing but instead we spent days in bed, me trying to coax her to eat and her crying and fussing and refusing…and something else felt off. So off…she would go very still and limp. From screaming to nothing.

A couple of doctor’s appointments later my fears were confirmed, she was not doing well. So, we moved into the regional hospital.

The diagnosis was failure to thrive, even with being tube fed she still lost weight and faced a few other health issues. There is nothing scarier than a doctor shaking their head and saying they didn’t know WHY.

Her blood pressure is unstable, her heart is misbehaving, she is having ‘grey spells’ and the doctors are as frustrated as we are. She is down from 7 lbs 11oz to 4 lbs 11oz.

So, Cecilia and I walk the halls at the Regional Hospital, we walk up and down paediatrics, chatting with nurses, getting to know other inmates/residents…we had long and deep conversations about fighting hard and the importance on eating. (My aunt commented she is the first girl in our family we prayed would gain weight)

After 5 weeks we are finally seeing some progress! New medications seem to be helping and she is calmer. I miss the kids, I miss home, I miss my bed. But we are where we should be. Thank you for the meal train and visits from my friends. We are hoping to get some day passes soon and come home.